Fibrodysplasia Ossificans Progressiva
Welcome to the website of the ‘Cure FOP Foundation’ (in Dutch: Genees F.O.P.) On this website you will find information about the rare disease; fibrodysplasia ossificans progressiva which our 14 year old son Yorick was diagnosed with. Our foundation raises money to support research on this disease, in the hope that a drug will be found as soon as possible.
The "Money Thermometer" indicates the amount of money which we have raised with our fundraisers. This amount was transferred to the IFOPA for purpose of the search for a cure for FOP.
Below is a YouTube item of our son Yorick, who explains a little about FOP himself. There are English subtitles, you can click them on if you press the play button and then go to the "settings" on the lower right (small gear).